December 30, 2011
Still hanging in there.....
We are still to hanging in there, but Austin still feels really bad. This will officially be the 3rd holiday in a row that he is sick, which is rather stressful/inconvenient because all of the normal doctor's offices are closed, pharmacies are impossible, and it means more possible trips to the ER, visiting docs that do not understand his condition. Luckily his horrible diaper rash has cleared, but the poor guy just isn't eating. As a result, I can see some of the bones in his chest and ribs. His poor little eyes just look sunken in and grey around the edges. When he does eat, it comes up shortly after. He is taking fluids, no bottles, but I am not sure if it is enough to compete with the amount of liquid that keeps coming out of his bum. Adam made a trip to Moab yesterday, his return can't come soon enough because I am getting very nervous about Austin's condition, I feel a seizure is just around the corner. The poor little guy has spent more time sick lately than well. I will continue get puked on, wipe up diarrhea, and bugging his doctors because he deserves to feel better.
December 29, 2011
Just when you think we are making progress.....
Just when we think we are making progress Austin must have picked up Rotavirus somewhere, maybe the hospital. He has had diarrhea since Monday. Days and days of diarrhea have made his poor little bum so raw that he is having mild BHSs again and I can't get him to eat much. On the bright side his ears seems to be doing great! I just wish I could get him to eat and grow some more. This kid is going to age me.
December 26, 2011
Surgery....
Austin had his tube surgery on Friday morning. The morning started pretty early, we had to be at the hospital by 7 for check in. He wasn't able to have any solids or milk after midnight and no clear liquids after 6am. We got some apple juice in him until we left for the hospital. The procedure was performed at the Children's hospital Denver, south campus. My parents drove me over, while Noah and Daddy went to a movie. I felt pretty good, and so did Austin for the first hour of the morning. Around 8am he started getting pretty cranky, asking for a bottle and pulling at his ears. In the days leading up to the surgery we suspected that he was getting another ear infection because he was really cranky unless on ear drops and Motrin. While he was playing in the hospital crib he jumped and hit is chin on the side of the crib. This triggered a pretty bad BHS.
This is him in his little surgery outfit.
We had what seemed like 10 people come in the room asking all kinds of questions about his condition. They wanted to know what his seizure history has been, what kind of BHSs he has on a regular basis, they weighed him, measured him, etc. He wasn't very thrilled and I was ready to get the show started. Once we were all ready the Dr came to check in with us. Since his normal Dr was not available today, we used the on call Dr that day which was Dr Friedman. I hadn't met him, but he seemed nice enough. He wasn't convinced that this surgery would help his condition, but could see the urgent need for it. The nurse said that he had lots of fluid in his ears, so they would clean that out during surgery. At 8:50 I was dressed in my not so cute outfit and I carried him to the OR. They decided not to take out his adenoids, so he was just on general anesthesia. They asked me to lay him down on the table. When I put him down he was very angry and started to have a BHS. At 8:59 they put the mask on his face, which caused him to go into a full BHS. It was hard to see him struggling, when he finally took a breath in the anesthesia made his body convulse which I was sure was the start of a seizure. They reassured me that this was normal and escorted me out of the room. I went to change out of my outfit. By the time I got back to the lobby I had time to call Adam, cry a little and then it was 9:08, and the DR was looking for me, to tell me that he was done! The surgery went well although he was already on his way to another infection. The picture above are of the tubes they put in each ear. I was able to walk back to see him immediately, he was already awake drinking some water. When he saw me he was very angry. The nurse decided it was time for some Tylenol. Once that kicked in, he was his happy little self. We were on our way home by 10:00am, and that was it. He had been a completely different baby ever since. There are so many daily decisions we make as parents, I can say the decisions to give him surgery is the best one we have ever made. He is now happy, he will play by himself, and acts like a normal happy child. We received the best gift for Christmas, our happy baby boy. I love seeing him grow, and explore his world on his own. Now that we can actually put him down he loves to play, and he is so animated. He has such a cute personality. We have been BHS free since Friday, and you can tell that this is a new beginning for us as a family. We are so much more relaxed and happy. Lets hope we keep this good track record, and our little boy will flourish in his new environment. All I want for him is health and happiness, I just love him so much.
This is him in his little surgery outfit.
We had what seemed like 10 people come in the room asking all kinds of questions about his condition. They wanted to know what his seizure history has been, what kind of BHSs he has on a regular basis, they weighed him, measured him, etc. He wasn't very thrilled and I was ready to get the show started. Once we were all ready the Dr came to check in with us. Since his normal Dr was not available today, we used the on call Dr that day which was Dr Friedman. I hadn't met him, but he seemed nice enough. He wasn't convinced that this surgery would help his condition, but could see the urgent need for it. The nurse said that he had lots of fluid in his ears, so they would clean that out during surgery. At 8:50 I was dressed in my not so cute outfit and I carried him to the OR. They decided not to take out his adenoids, so he was just on general anesthesia. They asked me to lay him down on the table. When I put him down he was very angry and started to have a BHS. At 8:59 they put the mask on his face, which caused him to go into a full BHS. It was hard to see him struggling, when he finally took a breath in the anesthesia made his body convulse which I was sure was the start of a seizure. They reassured me that this was normal and escorted me out of the room. I went to change out of my outfit. By the time I got back to the lobby I had time to call Adam, cry a little and then it was 9:08, and the DR was looking for me, to tell me that he was done! The surgery went well although he was already on his way to another infection. The picture above are of the tubes they put in each ear. I was able to walk back to see him immediately, he was already awake drinking some water. When he saw me he was very angry. The nurse decided it was time for some Tylenol. Once that kicked in, he was his happy little self. We were on our way home by 10:00am, and that was it. He had been a completely different baby ever since. There are so many daily decisions we make as parents, I can say the decisions to give him surgery is the best one we have ever made. He is now happy, he will play by himself, and acts like a normal happy child. We received the best gift for Christmas, our happy baby boy. I love seeing him grow, and explore his world on his own. Now that we can actually put him down he loves to play, and he is so animated. He has such a cute personality. We have been BHS free since Friday, and you can tell that this is a new beginning for us as a family. We are so much more relaxed and happy. Lets hope we keep this good track record, and our little boy will flourish in his new environment. All I want for him is health and happiness, I just love him so much.
December 22, 2011
Snow Day!
We got around 12 inches of snow today. It is going to be a white Christmas. We took Noah out sledding today, it was really fun. We also spent most of the day making treats for our friends and neighbors. My goal is to teach Noah that Christmas is about giving, not just getting gifts. He loved it.
Thank the heavens that surgery is tomorrow. We think Austin is getting another ear infection. He had a pretty bad BHS today, but felt much better after ear drops. I am a little nervous and excited for him, I hope this will help him feel better. I love the little boy he has become when he is well, he is so sweet.
A few days ago we made our first gingerbread house, it was a train! Really fun!
Thank the heavens that surgery is tomorrow. We think Austin is getting another ear infection. He had a pretty bad BHS today, but felt much better after ear drops. I am a little nervous and excited for him, I hope this will help him feel better. I love the little boy he has become when he is well, he is so sweet.
December 19, 2011
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